Stories of Lyme Disease Patients
(Sorted by State)

Lyme disease is a serious bacterial infection caused by a tick bite and affects humans and animals.

Table of Contents

Canada Lyme disease patient stories
International Lyme disease patient stories
Lyme disease stories, patient location unknown
Lyme disease story collections

Alabama Lyme disease stories

Carol P's Story, Carol Potts, Alabama
Jim's Story, Alabama

Arkansas Lyme disease stories

Log Cabin Democrat: Medical community split on Lyme realities, Cindy Goode story, AR, 6/22/97

California Lyme disease stories

The Dream Raper, Ingrid's story by Patrizia Ahlers-Johnson - Prunedale, California
Classmates join boy's fight with Lyme disease, Wade Barrett story, Contra Costa Times, Dec 97
Lyme disease history, diagnosis, treatments for Arthur J. Doherty - Lompoc, California
Cindy Frazier, Tuolumne County, California
Chelsea Frazier, Tuolumne County, California
Colter Frazier, Tuolumne County, California
Carly Frazier, Tuolumne County, California
Lee Lull - Marin County, California
A Writer's Lyme Story - Patricia, Los Angeles, California
Sometimes I Feel Comfort In The Pain...- Nancy A. Seppala - San Diego, California
Todd Summer - San Diego, California

Colorado Lyme disease stories

Rafelle Dart - Colorado
Lyme Disease is More Than a Tick Bite - Hilary McDonald - Colorado

Connecticut Lyme disease stories

Cindy Alfredo - Connecticut
A Long, Strange Trip: One Woman's Journey Through The Land Of Lyme Disease, Laurie Blair,CT
Keep Looking for the Light at the End of the Tunnel, Mona Bradway, CT
Alyssa Ciasullo, Fairfield County, Connecticut
Marie Ciasullo, Fairfield County, Connecticut
Paul Ciasullo, Fairfield County, Connecticut
Steven Ciasullo, Fairfield County, Connecticut
Underdiagnosis of Lyme Disease - David Demarest story - Middletown, Connecticut
Roger A. Doyle, Fairfield County, Connecticut
Child Lost To Lyme Disease --The Forschner Story - Jamie Forschner - Connecticut
Child Lost to Lyme Disease - The Forscher Story - Tolland, Connecticut
Mrs. Karen Forschner [Jamie Forschner story] - Tolland, Connecticut
Conflict shadows couple's Lyme disease crusade, Forschner story, Hartford Courant July 13, 1997
The Morrissey's Story - Erin, Brian, Cathy, Brian (son), Kevin, Meghan - Connecticut
Erin's World, Erin Morrissey Story, Westchester Co. Weekly, Aug 1999
My Name is Erin - Erin Morrissey - Connecticut
Woman chronicles fight to get doctors to take LD seriously - Polly Murray story
Our Story, By Joseph P. Orban, III, Connecticut?
Andrea - Connecticut?

Delaware Lyme disease stories

Nancy Brown, Sussex county, Delaware

Florida Lyme disease stories

One Family’s Life Forever Altered by Lyme Disease - Susan and Chase Parrish, Palm Beach, Florida
Joan Mazzoli - Sarasota, Florida
Leah, central Florida
Kelly's Story - bitten by tick in Florida

Georgia Lyme disease stories

Lyme Disease Strikes in the World of Pro Golf- Tim Simpson, Atlanta, Georgia

Illinois Lyme disease stories

My Lyme Story - Lou Ellen - Illinois
Lynelle Piercy story, For Lyme Disease Victims, Battle Is For Better Treatment, Illinois
Dianna's Story - Illinois
Healing Harps, Kerry Sandford, Illinois?

Iowa Lyme disease stories

Lyme Disease in Iowa - Geri Fosseen - Iowa

Kansas Lyme disease stories

Audrey Martiny, Kansas
Brenda Baker - Derby, Kansas
Lyme Disease hit after vacation at lake, Ron Cody story, Ark Valley News Online, 9-4-97
Deb - Kansas

Kentucky Lyme disease stories

Cynthia Conrad - northern Kentucky
Kathy Old - Kentucky

Louisiana Lyme disease stories

Deborah E's Story, New Orleans, LA

Maine Lyme disease stories

Amy B's Story, Bradford, Maine

Maryland Lyme disease stories

Village man talks about uphill battle against Lyme's disease, Roger Budd, Montgomery Village, MD
Confirmed Lyme Cases Decreased in 2000 - But Beware, Cheryl Emery, Bay Weekly, June 2001
Lyme Disease Changed My Life Don't Let It Change Yours, Cheryl Emery, Bay Weekly, May 2000
Dear Editor: I have a story to tell, by Cheryl Emery, New Bay Times, July 1999
Lyme Disease Incidents Show Large Increase in Region, by Cheryl Emery, St. Mary's Today
Ms. Andrea Keane-Myers - Baltimore, Maryland
Ticked Off - Kathrine Fleshman story - Baltimore magazine
Marian - Maryland

Massachusetts Lyme disease stories

Karen's Life Does Count - Karen Sullivan's story - Massachusetts
Lyme disease tragedy inspires vigil, Karen Sullivan story, Cape Cod, Massachusetts
Lynn Lane, Cape Cod, Massachusetts
Cheryl - Massachusetts
Lyme Disease and Me, Denise, New Bedford, Massachusetts
Paul - Massachusetts

Michigan Lyme disease stories

Dangerous Deer Hunting in Jackson County, Michigan - Darryl Current - Jackson County, MI
Victoria Draper, Jackson County, Michigan
Touching My Family's Lives, Carol A. Fisch, Michigan
Living With Lyme, Part 1 - Carol Fisch story - Michigan
Living With Lyme, Part 2 - Carol Fisch story - Michigan
Annie and Wolfgang Amadeus Mozart - Annie Leach and her dog Wolfie - Muskegon, Michigan
Katie's Story - Katie Lighthall - New York/Ann Arbor, Michigan
Nightmare in Jackson County, Pam Little, Jackson County, Michigan
Shelly Pinter (Wiliamson), Saginaw County, Michigan
Ten Years With Lyme Disease for Calhoun County Resident, Mary Shadley, Calhoun County, MI
There Are No Deer in Wayne County - Connie Siese - Wayne County, Michigan
Lyme Disease is "Rare" in Michigan - Sharon Smith - Michigan
Long Suffering Litchfield Woman Spends Last 7 Years Trying to Shake Lyme, Charity Smith

Minnesota Lyme disease stories

My Story - Tom Grier - Duluth, Minnesota
Sylvia A Roles - Minnesota
L. David Olson - Minnesota?

Missouri Lyme disease stories

Lyme Disease Really? - Janet Streight - Springfield, Missouri
Mary - St louis, Missouri
Stacy - St Louis, Missouri
Deb's Story, Kansas/Bourban, Missouri
Brenda Baker - Derby, Kansas/Scotland County, Missouri
Audrey Martiny, Kansas City area

Montana Lyme disease stories

Jason's Story - Montana/Alaska

Nevada Lyme disease stories

Priscilla Horne - Las Vegas, Nevada

New Hampshire Lyme disease stories

Dear Lyme Alliance - Jan Boisvert - New Hampshire/New Mexico

New Mexico Lyme disease stories

Dear Lyme Alliance - Jan Boisvert - New Hampshire/New Mexico

New Jersey Lyme disease stories

My Personal Fight Against Lyme - Bianca's story - Part 1 - New Jersey?
My Personal Fight Against Lyme - Bianca's story - Part 2 - New Jersey?
Letters: Tic Talk, Karen Crown story, New Jersey, The Village Voice, Dec 30, 98 - Jan 5, 99
NJO: The nightmare of Lyme disease - the Gayle Holdsworth of Madison story - 11/15/98
A Lyme Disease story, Laurie Larson, New Jersey
Laurie Larson - New Jersey
A blind woman's search for justice, Leila Laufer story, New Jersey, Bergen Record, Feb 1, 1998
Lyme Disease: My Experience - Heather Malin - New Jersey
Ann McChesney, Middlesex County, New Jersey
Jackie - Pennsylvania/New Jersey
Suz - New Jersey
Kelly - New Jersey
A Man's Fight with Lyme, NJ
John O'Neill story, NJ
Simmi D. Oppenheimer story, NJ
Robyn's story, northern NJ
Tim - New Jersey
Mariah Lee - New Jersey?
Reid - New Jersey?

New York Lyme disease stories

Now I Was Free? - My Story As a Vaccine Trial Volunteer - Clare Bennett - New York
Denise Chapman story, NY
Ticked Off - A LD patient fights for treatment, Michael Egan story, Village Voice, Dec 98
My Battle With Lyme: A College Student's Story - Colleen Ann Horn - New York
Bob Levine - Port Jefferson, Long Island, New York
Jim Marino, Brookville, NY
Lyme disease worsens; insurer refuses to pay - update: Jennifer McCarron story, New York, 4 Nov 97
Port Jervis' heart beats for Jennifer [McCarron], Times Herald-Record, 10 Feb 00
Resident thanks community for helping family get treatment - Jennifer McCarron story
Donations helping Lyme victim - update: Jennifer McCarron story, New York
The Unfolding Drama, Stephen J. Nostrom R.N., Mattituck, New York
Woman Battle Two Foes: Disease and Insurer - Virginia Philo of Clifton Park, New York
Vaccine May Have Harmed Teacher - Alison Schettini - New York
Alison E. Schettini - New York
Dawn Simonsen - New York
Life with a Twist of Lyme - Patricia Sprague - New York
Life With a Twist of Lyme - Pat Sprague - New York
Patricia Sprague - New York
Mrs. Ruchana White [Evan White story] - Suffern, New York
Kath - Ulster County, New York
Angelo and Margaret - Queens, New York
Laurie - New York
About me - Long Island/NYC - New York
Sean - New York/Australia
Rona - Glen Cove, New York?
Rainy - New York?

North Carolina Lyme disease stories

Mike and Susan Wilson - Wilmington, North Carolina
Charae - New Jersey/North Carolina
Kelly - New Jersey/Florida/North Carolina
Steve Alexander - NC
William - costal NC

Ohio Lyme disease stories

Cynthia Conrad, northern Kentucky and Ohio
Dianna's Story, Illinois and Ohio
Down But Not Out From Lyme Disease, Marianne Miller story, Ohio, Canton Rep., 23 Sep 97
Living with Lyme Disease, By Mary VanOyen Force, R.N., Cleveland, OH
Karen - Ohio

Oregon Lyme disease stories

No Lyme in Oregon! - Rose Marie Smith - Oregon
A Year Ago I Climbed - Nancy Oace - Portland, Oregon
My Lyme Disease Experience in the State of Oregon, Rita Stanley
Daniel Wood, Ph.D., Lane County, Oregon
Patricia - Oregon?

Pennsylvania Lyme disease stories

David Amole, Berks County, Pennsylvania
Mr. Carl Brenner - Hawley, Pennsylvania
Brian Forman, Green County, Pennsylvania
Rosa Breindel - Kersey, Pennsylvania
Harold and Patty Smith - Pennsylvania
Anna Swanson, southeastern Pennsylvania
The Living Slide Show - Virginia T. Sherr, M.D. - Holland, Pennsylvania
One woman's experience, Mary Trayes story, Pennsylvania, Phil. Business Jrnl, 1997-12-15
By the Grace of God - Tara Stoop - Pennsylvania?
Tara's story - Horsham, Pennsylvania
Melody O'Beau - Pennsylvania?
Sherri Monroe - east, (PA?)
My Lyme story - Matt - Pennsylvania

Tennessee Lyme disease stories

Marie Turley, Davidson County, Tennessee

Texas Lyme disease stories

James Martin's Lyme Disease Horror Story - Euless, Texas
Cary Terrall - Austin, Texas
Jean Ann - Texas
Lyme Disease, and Why It's No Fun! - Barbara Watkins ("Winkie") - Texas

Virginia Lyme disease stories

Emery Battles On and Off the Court - David Emery story, Washingtonpost.com, VA
The Heart is What Matters - Wilkins Hubbard, M.D. - Norfolk, Virginia

Wisconsin Lyme disease stories

Finally Set Free - Patricia Anne Sampson - Wisconsin
Julie Heise Lyme disease story - Dousman, Wisconsin
Julie Heise - [Dousman, Wisconsin]
Woman and her children contracted the disease on a hiking trip to Wisconsin - Parrish Family story
My Lyme History - Jane M. Johnson - Wisconsin?
My story - Jon - West Bend, Wisconsin

Canada Lyme disease patient stories

Brian Pierson - Lethbridge Alberta, Canada
Peter Vyselaar Story, Saskatchewan, Canada

International Lyme disease patient stories

My years with Lyme disease, eBMJ -- Wilson, UK, BMJ, 4 Sep 99

Lyme disease stories - patient location unknown

This Is My Quest - To Follow That Star!, Grace McGuire story
I Just Want My Brother Back by Marie DiDario
Our Daughter’s Pain - Lori Bachmann story by Angela and Lou Bachmann -
Chronic Lyme Disease ~ Our Daughter's Pain ~ - Lori Bachmann -
...to Know the Face of My Enemy - Robert Basinger - east coast
Mike Bernstein -
Jane Dean -
Scott Dever -
My Story - Susan Evans -
Mary Halsten -
I_Had_Chronic_Fatigue - Emily Lux
Donna L. Morgan -
Golfer Sees Help In Biaxin - Arthur Podaras
Gabriel Lee Stevens -
Steph's story -
Mary - east coast?
Steven - west coast
Merri - west coast?
Carrie -
Janet -
Carla -
Diana -
Joanie -
Nora -
Lynne -
Jan -
Coleen -
Trish -

Lyme disease story collections

LDF -- Faces of Lyme Disease
The Lyme Disease Quilt page - personal stories
Patient Gallery - LDIR
Four patient stories - Senate Lyme hearing - August 5, 1993
Jean's LymePage - stories and links


For more information on Lyme disease see: Lots Of Links On Lyme Disease

Comments or questions concerning this page should be directed to Art Doherty.

Last updated on 1 August 2001 by
Art Doherty
Lompoc, California
doherty@utech.net