Jaymie Toy - 12/08/00 21:11:40 My Email:jaymietoyf@yahoo

Comments: I was just looking for someone to talk to and to relate to what I am feeling. I was diagonosed with endo just a few months ago but I cant really remember when I never had pain. and to top it all off i just got married in august what a good way to start off!! so if you have any advice please email me. Sincerely, Jaymie Toy

Cathy Weaver - 11/25/00 22:36:08 My Email:cweaver@uark.edu

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Mary Beth Weaver - 11/25/00 05:10:14 My Email:maryweaver02@hotmail.com

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Ivy - 11/21/00 20:07:31 My Email:Ivy161281@excite.com How You Found Me: Yahoo

Comments: Thank you for the Endo pain calender.

Gale - 11/21/00 11:50:45 My Email:galeb@nbnnet.nb.ca

Comments: Thanks Rachel, I Have had surgery a couple of times,I have thyroid and Hyperinsulinemia(diabetes),problems. I feel the way you do,this could help me a lot,when you have problems in your body,your insulin will act up,etc.... So I think this has been there for a while and without knowing it has been the root of many of my problems.I would like to keep in touch,a I go through this,my date is the 21st(if I hadn't told you).I am working at getting my body ready for this. Thanks again, Your "new"Endo sis GALE

gale - 11/19/00 03:54:38 My Email:galeb@nbnet.nb.ca

Comments: hello, I am sitting here because I can not sleep and was using this time to help me understand what it is I have.(endo) I am having surgery 4 days before christmas.MERRY CHRISTMAS!! I was reading your site,thought I would drop a line.GB

Sarah - 11/11/00 23:31:56 My Email:sarah_glasgow@hotmail.com How You Found Me: web search

Comments: After months of pain, I was just diagnosed with endo. The doctor wants me to start Lupron, but the insuraance refuses to pay for it. After reading all the other comments, I don't really want to take it anyway. They could not remove it with laser during he laproscopy because of the location and endangering other organs. I don't know what other treaments there are. Is Lupron really that effective?? The doctor said it would take it away, but most of you seem to say that it came back anyway. Suggestions? Please give me any personal advice on where to go from here. Thanks!

candice - 11/10/00 01:27:19 My Email:candicerichard@msn.com How You Found Me: internet

Comments: I love your site and have printed most of your information. I was diagnosed in April 2000 ( after being symptomatic for a whole year). I had surgery to remove lesions in July 2000 but I am back to feeling miserable. My doctor put me on deprovera shot, loe trin (back up BP) and Naproxen.nothing seems to help so I am desperately seeking out inforamtion. Please write me back.

Mandy Lawter - 10/31/00 15:01:35 My Email:mmlawter@srhs.com

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Mandy Lawter - 10/31/00 14:30:55 My Email:mmlawter@srhs.com How You Found Me: WITSENDO

Comments: I think what you have done is wonderful !

SUE (Australia) - 10/27/00 05:21:30 My Email:SueC@bramwa.com.au How You Found Me: Endo Forum

Comments: Great site that you have created and thanks for sharing your story. Know that if ever you need support that I am there for you. Chat soon on the forum. Sue from Perth, Western Australia

Sandy - 10/27/00 03:12:01 My Email:SandyMWoods@excite.com How You Found Me: forum

Comments: Rachel, Great site! I will have to come back when I have more time. Thanks for putting this together & sharing everything. Sandy

Denise Bitner - 10/23/00 02:14:11 My Email:bitners@acsworld.net How You Found Me: internet

Comments: I have been diagnosed with endometriosis & maybe some day will take the time to put my "story" on the internet! Thanks so much!

Karen Prinsloo - 10/22/00 12:29:28 My Email:andrep@sai.co.za How You Found Me: search topic-endometriosos

Comments: My story "Endometriosis" My name is Karen Prinsloo and I am from South Africa, Kwa-Zulu-Natal. I am 27 years old. I was surfing the net for stories about endometriosis and came across this interesting site for Endometriosis sufferers and decided to put my story on the net and see if I could share my story and get help from other endo sufferers. I had a normal menstrual history, started menstruating at the age of 12 and had normal periods. At the age of 19 I went on the pill and was on the pill for 7 years, as I got older my periods were normal but I experienced extreme pain during my periods an lower back pain and pain in the lower intestines. I thought this was normal "period pain" that everyone spoke about and I just took aspirin for the pain.   When I was 26, in September 1999, I had to undergo an emergency appendectomy through a laparoscope and the surgeon who performed my operation discovered large adhesions and bad endometriosis on the left side of my uterus. A specialist gynae was called in to theatre to look and the problem, he then came to see me after the op and explained the situation and said I must make and appointment to follow up the problem. I saw him about a month later. Then the fun began!! I had the choice of a monthly injection or to take Synarel for three months to decrease the endo and possibly make it easier for him to remove the adhesions with surgery. The Synarel treatment was horrific, my hormones were up the pole and the hot flushe that I experienced were unbearable. I was very good in taking the Synarel and during monthly exams the gynae said the endo seemed to have decreased. He decided, however, that he would still like to remove all the adhesions with surgery, I took synarel for 4 months and had a laparotomy in February 2000, the op went well and I was "Free" of endo.  After the op he came to see me and informed me that he had to remove my left fallopian tube as it was all mangled due the endo, this was a bit of a blow to me but he assured me that I would still be able to have children as the right tube was still functi nal. I did not have a period for 5 months and my hormones were still upside down from the Synarel treatment. After many more visits to the gynae and all the bills on top of all the other stress, he eventually put me on Ovral and in August 2000. My periods fi ally started and I have had normal periods for 4 months now. My husband I and I would really like to have a baby and every month is a wait to see if I am pregnant, with only one tube it is a bit difficult and I am getting a bit disheartened as I'm not ge ting any younger. Well, the whole trip was not very pleasant but a learning curve that I suppose I had to go through. I am just grateful that I'm okay now and can still have children. I think that sharing my story can help other people realise that Endo okay and can be dealt with.  I do however have questions that I would love to ask and if anyone has any news or answers for me please could you e-mail me and we can possibly start our own little "support group" I want to know if endo can come back after you have had it removed? Is it easy or possible to fall pregnant with only one tube? I would love anyone to get back to me with thoughts or answers of just to chat about their ENDO experience!! please contact me on andrep@sai.co.za or prinslok2@dohho.kzntl.gov.za Thank you All the very best to everyone and hope to hear from you soon regards Karen

Sue Zonneveld - 10/16/00 05:58:06 My Email:sage2@home.com How You Found Me: yahoo

Comments: Thanks for putting together this page.It sure is great to read other stories!!! I`m 32 and have hade endo since 1996 and It has been a horrible time!!! I do however have a 2 year old son!!!!! I was able to get pregnant 3 weeks after my first lap. The pain was back with in months of his birth. Just had lap#2 The pain is still very bad. I do find that Raspberry Tea helps with the cramps and warm baths!!!! Any other pain remedies out there?????? Best of luck.

Cindy Cordova - 10/05/00 20:00:04 My Email:ccordova@calstate.edu How You Found Me: Yahoo search engine

Comments: I am a 30 yr old with endo. I've had 2 laps (the most current was last Friday) and have been told by my gynecologist I have the worst case of endo he has ever seen. Comforting, huh??!! His only real solution is a hysterectomy since I REFUSE to take Lup on or BCP's ever again . . . as you know it's just NOT worth it! In a weird way, it is comforting to read about your battle with the disease. I guess it makes me feel not so alone in my pain and makes me realize my pain is REAL. Thanks for sharing your story.

Margared Duarte - 09/27/00 18:48:45 My Email:duartem@excite.com How You Found Me: web

Comments: I took it into my own hand to find out what was wrong with me. I had apathetic doctors and I also had doctor who told me my pain was in my head. This really upsetted me. I finally found a doctor who just listened and sympathized and did a lap on me. Sh could not get most of it out. I did go on lupron and I still have pain time to time. I finally join the endo association and I am taking BCP. I just don't know what to do next. Anyway, I am trying to figure out what naturalistic approach I can take, hat doctor I can see in the NY NJ area? If anyone has any ideas of where I can go from here let me know. I have surrendered this to God. I desire to have children one day, this too I have surrendered to God.

debbie - 09/27/00 08:11:41 My Email:debbie_bryson@hotmail.com How You Found Me: yahoo

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Rovina - 09/20/00 20:09:19 My Email:ro_iva@hotmail.com How You Found Me: Searching the topic of endometriosis

Comments: In Aug. I experienced a couple of pelvic pains and I to went to my primary doctor and told her my systems they gave me a pap and a pelvic ultrasound and they came back fine. But, I continued to get a pain occasionally. So, I took it upon myself to see a OBGYN, who I told of my problems and what I had experienced. He gave me another pap and requested my records from my primary doctor and suggested to me to start taking BCP's which I was againist because I was on them four years ago and started having bre k through bleeding. He asked me what kind I was on and told me they were no good ( by the way the pill were Ortho Novum 7). He gave me another type to start but I'm not certain about them. My menstrual cycle is quite normal in a sense that it comes eve y month about the same time and I have a normal flow not heavy at all, which accompanies, a hour worth of cramping. But, the OBGYN said I might have a minor case of Endo, but to take the BCP's for six months and come back. Please give me some advise as o what you think I should do. Thanks for listening.

Kym-Ann Wilson - 08/01/00 02:41:16 My Email:wildlovechild84@hotmail.com.au How You Found Me: need info about endo for PIP

Comments: I think its very nice of you to share your story with others, i was wrongly diagnosed with endo at 14 and for a month i lived with the fear of the piossdibility of niot conceiving so thank you

yvonne perkins - 06/14/00 02:52:19

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Kimberly Krol - 06/07/00 16:54:11 My Email:kimk@alltel.net Comments/Suggestions: thanks for being

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Karen O'Donoghue - 05/27/00 18:48:48 My Email:odonoghue.kv@pg.com How You Found Me: surfing!! Comments/Suggestions: Great story - I feel for you!

Comments: I am 32 and single, I have had sever periods since the age of 13 - was always told it happened to some women! 6 years ago I came off the BCP to give my body a break and started getting abdomenal pain every day I saw a gynae and had a lapo. They said I h d an enlarged pelvic pain - cannot do anything for me - stay on BCP permanently until I want to try for children. After 3 years on Depo Provera the pain is back with me every day, since a year ago. I saw another gynae yesterday he reckons I have endo fo sure! I go in for another lap in 2 weeks and if he's right immediate helium surgery to remove the tissue. I am positive as I feel he is doing something to help me and acting quickly. I do wonder about whether to stay on Depo - its been great for me I finally gained weight and have no cycles/no pain/no PMS - but whether it will help in the future who knows! I am reading various sites as it is helpful to know that I am not going nuts! The pain is very real! Thank you.

Randi Nelson - 05/21/00 17:23:42 My Email:RandiNelson@msn.com How You Found Me: web search

Comments: Hi. I am looking for information on this dreadful disease. I have had 2 laparoscopies in the last six months and will be having a laparotomy in September 2000. I think is is time I start trying to learn more about endo.

erin - 05/14/00 21:31:54 My Email:nireb@juno.com How You Found Me: just looking

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Natalie Timme - 04/29/00 04:12:52 My Email:phatnat68@yahoo.com How You Found Me: looked up endo

Comments: I'm preparing to get a lap done. I'm experiencing stabbing pains in both my sides, cramps, and urinary problems. I've been put on a low estrogen bcp that's causing me to feel even worse. :(

dawn - 04/19/00 04:37:38 My Email:dlouden123@yahoo.com How You Found Me: internet search

Comments: i am an 18 student living in ontario. for several months i have suspected that perhaps something was wrong with me. i was recently surfing the web looking for information for a school biology project and i came across all this information on endometriosis as i was reading over the symptoms, i found myself wondering if someone else was describing how i had been feeling over the past few months. i immediately changed my report topic to endo and in the past few days i have become more educated on the subject than most people are in their whole lifes. i don't like my male doctor so i am in the process of getting a new one. i am finding it hard to work up the courage to tell the doctor i think i have endometriosis, but i guess the longer i wait, the worse it ma get. thanks for being one more source of knowledge for me to turn to. sincerely, dawn

Hayley - 04/15/00 06:08:48 My Email:hdremedies@yahoo.com How You Found Me: surfing the web

Comments: At the age of 14, I found out that I had endometriosis. I had it so bad that I could have had a hysterectomy if i was older. I had a four surgeries for my problems. My last one was successful and ended my battle with endometryosis. Praise God.

J.Fleming - 04/12/00 00:20:16 My Email:JBBMMA@aol.com How You Found Me: seaching the net

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Jennifer - 04/10/00 20:18:54 My Email:myfathersheart How You Found Me: browse

Comments: Hi I just wanted to give a little hope. I was able to find the most meraculous doctor! His name is Todd Jenkins. I was told by my PC that I just had back pain and to loose weight(the weight I had gaines from the pain) Then I saw my ob and she told me I wa nuts because I had been molested I was manifesting pain psychologically! Then I found Dr.Jenkins. He had me in the operating room within 2 days and he is the most sensitive Dr. I have found I encourage you, If you are not happy with the treatment you hav received go for a different doctor. Trust your instincts as a woman. You know your body better than anyone else. Guess who told me to go and see the Doctor for endo....my new chiropractor!!! Of course when my PC heard this she laughed. Foolish of her bec use he was right and she was wrong. Anyway, you have torely on yourself. Dr. Jenkins is located in Orange, CA. Good Luck and try not to loose heart. Jennifer

Samina Zain Ali - 03/28/00 14:06:32 How You Found Me: on the internet Comments/Suggestions: thank

Comments: I have the same problem and I am finding it hard to live with as I am trying to have a baby. I have had two miscarriages 1 after 4 months and the 2 after 3 months. I want a baby very much now and I feel I am getting older I am now 33yrs dob 191266

Laurie - 03/23/00 16:30:07 My Email:lgeorge@hi-line.net How You Found Me: yahoo-search

Comments: I am 31 and my story is different.I have one child and do not have much pain.I am lucky!However this is a warning to everyone who thinks something is wrong but has no luck in finding it.In Oct of 98 I had sugery for thought ruptured appendix.It was not th t but a ruptured cyst.We had told the doc we were trying to get preg for 3 years and had no luck, and if he found anything wrong during surgery PLEASE LET US KNOW.I was told he cleaned me up,no damage done,I should be fine,if not preg in 6Mo. to see someo e and my Family Practice doc should be fine.After seeing my reg doc I decided to see a OBGYN.With him I have done everything to get pregnant, NO LUCK. Last month during a sonogram he found lumps.He dug up my files from the surgeons office.In my files we f und that I have a bad case of endo.An overy is truck to my utures, my utures is stuck to my rectum, it was on my appedix he removed and several other spots.I am know looking at more surgery and we can kiss the chance of another child goodbye.I do not know yet what has happened to me over the last 11/2 years of non-treament and how bad this has spread.PLEASE EVERYONE BE YOUR OWN DOC AND LOOK OUT FOR YOURSELF.Ask for medical files, ask lots of questions and follow up on everything that is done to you.Please eel free to write me about any info you have or questions.GOD BLESS.

JessieRaye - 03/13/00 05:04:18

Comments: I have always had problems with my periods but never new I had a problem until my senior year in high school. I went to the doctor for a cyst that had burst. Since then I have many problems. I went into emergency surgory because they couldnt find my ovary and tube. It had flip to the back side of my uterus, scar tissue and endo. He wanted to go in and take both but I sign a paperwork saying no. Well they ended up taking it about a year later because I hurt so bad. Then about a year after that another surgo y to clean up endo and scar tissue again. So I only had one tube and the other was block full of scar tissue and endo. Between my boyfreind and I with six doctors telling us that we would never have children naturally. The only way we could would be invet o invertilation. Well that was about 10,000.00 and we didnt have that much money. I had given up on the ideal of having children. I hated being around them,to hear them to hold them. I figured it was easier to hate children than to ever get my hopes up to have them. I guess the reason Im telling my story is because miracle do happen and to always keep your hopes up in regards to be children and health. I finally decided to go to University of Michigan to help with my pain management. I was ready to have th m take all of it out when I told them I was four days late for my period. Since I had high risk of etopic pregnancy she had me take a prego test, it came back postitive. I was overwelmed and really didnt know how to react. exicted,happy,confused,anxious,s ared. It wasnt has easy as I thought it would be of course had to come back a week later to she if everything was doing what it was suppose to be doing and it was. My son is now ten months old and starting to go through terrible twos but I would never cha ge anything becuase he his my miracle son. Anyway good luck and share my story with those who are hopeless. thanks JessieRaye

melissa troutt - 03/12/00 22:26:02 My Email:melissat@geotec.net How You Found Me: just browsing

Comments: i have been having every symptom of endo.for a very long time, but was just diagnosed 4 days ago. i am scheduled for a laparoscopy in a month, i'm scared. it is also possible that i could have cancer, i'll find this out in 2 months, because dr's wait 3 mo ths before they do another pap, so in 2 months will be my next pap and i'll find out more about that. the main thing is i'm worried about not being able to have children. i just really appreciate your site it has really helped me out alot.thanks again.

kelly - 03/11/00 03:02:19 My Email:lorrainesimms@xtra.co.nz How You Found Me: just looking

Comments: Ive had endo for a few years now.As with everything else,you have your good days,and your bad.Its always so comforting to know that your not alone,that there are others that suffer the same problems.Thanks for making it not such a lonely and misunderstood thing.

Cheryl - 03/02/00 16:42:42 My Email:CBurket@compuserve.com How You Found Me: Surch

Comments: Thanks, I'm not alone, my endo adventure started in 1995, I was 43 and healthy as a horse, no symptoms, just found something during a routen GYN visit- what a trip that started. Had a lap and found endo, was removed, thought all was o.k. About a year lat r, sick all the time, pain and IBS distroying my life, looked like endo again, went thru all the horrifc tests and opted for histo, found adhesions everywhere, overies stuck to my apendex, had everything removed. Two years later the pain again and IBS and vomiting, did a lap again found adhesions and hernia, 3 months later, spastic IBS, vomiting, nausia and pain- 1 year later more tests found an obstructed large bowel, had surgery and resectioned the bowel and found a tumor, which was endo, you would think after a histo all would be well, I guess not- I pray I can get a life back, I have lived the last 5 years in Dr. offices and would love a change. God bless you all and pray that you journey will be short.

Mary Allen - 02/28/00 01:44:46 My URL:http://macatwoman.com My Email:macatwoman.com How You Found Me: yahoo search

Comments: oh! the stories we could share!! At present, I am recovering from bowel exploration - well we don't know if it is endo, could be hemorroids that are caused by STRESS - imagine that! Let's chat - mary/a.k.a. macatwoman

lesley - 02/26/00 04:11:48 My Email:lesley@techheadnet.com How You Found Me: yahoo

Comments: I have a similiar story. I have had endo for 5 years. I have had to laparoscopies and am now on Depo-Lupron for the second time in 2 years. I have chosen to have a hysterectomy in June. I have 3 beautiful kids despite the endo. I do wish to find a support group, please let me know of any. Thank You. Lesley

Jaclyn Hand - 02/26/00 01:23:23 My Email:gatekepyr@cs.com

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Vikki - 02/17/00 19:51:55 My Email:Ms_sharlae@yahoo.com How You Found Me: Looked up Endometriosis

Comments: I thank you very much for your story. I know I an not alone. I have read a lit of e-mails about Endo. I just wish I know someone who had it that lived close to me. Like when the pain is bad my husband is by my side and he says "yeah I know baby just hang n there" But he really dosn't and I don't want him to. I would not wish this disease on my worse enemy. ( if I had in). Thanks again for letting me vent. I hope you have a painfree day. May God Bless

Page Ritchie - 01/14/00 21:54:31 My Email:page4home@aol.com How You Found Me: searching for endo stuff Comments/Suggestions: Thank you for sharing!

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Margie - 12/21/99 00:23:49 My Email:mmurphy@wcoil.com How You Found Me: researching yahoo for endo

Comments: 13 years with Endo!! 3 laparoscopies; Danocrine; Ovral 21 continuous; Depo-provera; now trying Lupron. Probably going to have hysterectomy in next few months. Let me know if I can help anyone. (Also, most importantly, blessed with one wonderful child:)

Sarah Dumat - 10/24/99 19:13:32 My Email:sarah@dumat.freeserve.co.uk How You Found Me: searched yahoo

Comments: Thank you,I enjoyed reading your page. I too suffer from endometriosis, or so my gynecologist thinks. I am currently waiting for an apointment to have laparoscopy in order to officially diagnose it. Many of my symptoms are similar to what you have expr ssed here, and I'm comforted toknow that I am not the only one. I am 26 and desperately trying for a baby, but not having much luck at present, presumably because of the endometriosis. I hope that things improve for you in the future, best wishes, Sarah

Ashley - 10/22/99 18:47:31 My Email:Ashley@newing.fsnet.co.uk How You Found Me: Surfing for Endo Info & Support

Comments: Thanks for sharing all your experiences. Hope you find relief. Thinking of you.

LISA NYE - 10/19/99 01:11:55 My Email:BRADN@WORLDNET.ATT.NET How You Found Me: INTERNET

Comments: I CURRENTLY HAVE STAGE 2 ENDO AND I AM AT A LOSS. IHAVE HAD TWO LAPROS, BIRTH CONTROL, AND EVEN LUPRON, AND MY DOCTOR TELLS ME THAT THERE IS NOTHING LEFT FOR ME TO DO BUT TO START TRYING TO HAVE KIDS, WELL I AM ONLY 21 YEARS OLD AND HAVE ONLY BEEN MARRIED FOR 9 MONTHS. I DONT KNOW WHAT TO DO. LISA NYE

Chay Bridgewater - 07/08/99 19:53:46 My Email:crbridgewater@hotmail.com How You Found Me: Looking for info on lupron

Comments: My name is Chay. I am 22 years old and was disagnosised with endo june of this year. I had a lap and thought that was the end of my pain and fear of infertiliy. very little endo was found. he found some adhesions which leads me to believe that i have had o endo for much longer. my doc seemed very optismistic but when my 2nd period since my lap began, i thought i was going to pass out from the pain. my doc has suggested lupron to me. i had not researched much on endo but now reading all info and personal tories, i am very scared. if anyone has any info or personal experiences to shares on lupron please contact me. GOD BLESS YOU ALL MY SISTERS. I WILL KEEP YOU ALL IN MY PRAYERS.

Melissa - 04/06/99 07:22:27 My Email:mitja_2@yahoo.com How You Found Me: looking for info

Comments: I am 21 years old, and was diagnosed with endo 4 days ago. I have all the symptoms, but my dr put it off to the ovarian cysts he kept finding. I am lucky enough to have a 2 year old little girl, and a supportive husband (his first wife had severe endo, nd thyroid problems). I am scared.....if anyone has any advice PLEASE e mail me......I don't know what is going on. My Dr. is already talking about Lupron, we have already done BCP to treat the cysts, and the pain is mind boggling...it has been 18 month since this started. Now I know that I am not crazy and my pain has a name, what do I do now?

Heidi - 03/30/99 01:44:36 My Email:hlwaller61@YAHOO.COM How You Found Me: while searching for endo info

Comments: Your site has been very helpful. I have had pelvic pain for many years, getting worse by the years. I have started having alot of bowel problems, which were diagnosed as IBS. I feel this is all related to the endo. My OBGYN ordered a pelvic ultrasound which turned out fine. He hs started me on BC pills and prescribed me Lortab for the pain. I know I have to go through all of these steps. But I am ready for this to be over....This gets so frustrating some days. sometimes you think it's all in your h ad. But the pain reminds you it isn't. Thanks for this wonderful web page, lots of info here. Heidi

Mary Cabrera - 02/04/99 22:21:31 My Email:mcabrera@bps.nwsc.k12.ar.us How You Found Me: from your class Comments/Suggestions: Thanks

Comments: Great ideas come from great people! Thanks for your help!!!

Judy Collins - 01/24/99 20:21:57 My Email:stowe@eclipse.net How You Found Me: Yahoo Comments/Suggestions: See Below...

Comments: I am a fellow endo sufferer. I'm 39 and have had this disease for well over 20 years. I have an incredibly supportive husband of 12 years, but no children. I've been reading everyone's horror stories on the internet re. their expericence with endo, and say, "Been there, done that!". Because of this disease, my immune system has taken a dive and I have countless allergies and sensitivities to numerous substances, the irritable bowel has turned into a malabsorption problem, I have a heart arrythmia, Fibr myalgia (originally from the Lupron) and flare ups of chronic fatigue. I have also had 4 surgeries, and probably am looking at one in the very near future. The only real relief I have found with all of this is through homeopathic/natural medicines. Befo e I hooked up with my current naturalist - I was eating pain killers and changing jobs a lot (the unaffected work force does not have much compassion for a fellow worker passing out from pain at their desk - they view it as a liability to the company - if I hit my head on the desk on the way down - I might sue them!). Fortunately, I no longer take pain killers on a regular basis - thanks to Cramp Bark and other natural remedies. I had a very good (but extremely expensive) Endocrinologist, however, when I began seeing a homeopathic specialist - the endo Dr. took it apon himself to write a letter to the naturalist telling him he didn't know what he was doing and should leave my care to him. So, my current mission is to find an Endocrinologist who either be ieves in/or practicies natural medicine, along with traditional - in the NJ, NY, PA area. Does anyone have any ideas? If anyone wants the name of the homeopathic Dr. I'm currently using - e-mail me. I'll be happy to share what ever info. I have. Also, I now work for a company whose President suffers from endometriosis - and is a bit more understanding about the really bad days!

SHARON SMITH - 01/03/99 01:20:06 My Email:martysmith@webzone.net How You Found Me: searching on endo

Comments: THANK YOU FOR YOUR WEB PAGE. I HAVE BEEN DEALING WITH SEVERE ENDO FOR ABOUT 1 YR. AFTER I WAS DIAGNOSED, I REALIZED THE PAIN WAS NOT IN MY HEAD. I HAVE HAD ONE LAP SURGERY ALREADY TO BE DIAGNOSED. UNFORTUNAETLY THE DOCTOR I WAS SEEING DID NOT HAVE THE EXP RIENCE OR THE EQUIPMENT TO REMOVE THE ENDO DURING MY FIRST LAP. I HAVE TAKEN LUPRON FOR 6 MONTHS WITH NO LUCK. I ONLY FEEL WORSE. I HAVE HOT FLASHES, NIGHT SWEATS, SHORT TERM MEMORY LOSS, MOOD SWINGS AND DEPRESSION. I AM NOW TAKING AN ANTI-DEPRESSANT TO H LP WITH THE SIDE EFFECTS OF LUPRON. I AM GOING IN FOR MY SECOND LAP SURGERY ON 01/08/99. THIS TIME, MY NEW DOCTOR IS GOING TO REMOVE ALL OF THE ENDO HE CAN WITH A LASER. YOUR WEB PAGE HAS GIVEN ME HOPE. THANKS!

Lisa Scholar - 11/22/98 05:00:27 My Email:cool.touch@worldnet.att.net How You Found Me: surfing for endo support

Comments: I am a stage 4 endo sister. I have just begun Lupron as of this morning. I am looking for info from others who have tried Lupron. I am also interested in corresponding with other endo sisters, who are looking for support.

Kelley - 10/30/98 04:09:51 How You Found Me: surfing

Comments: Hello. I am 19, going on 20. I was recently diagnosed with Endomitriosis in May of 98.I learned that my Mother passes it on to me. I went to the E.R. because I collapsed ontp the floor in my apt. and they did a lap. 2 days later and comfirmed that I had E do. For 2 yrs. I had it and didn't know, just thought it was bad carmps. Well I have been through B.C.P., and now I'm on the Depo-Lupron shot for 2 months and it seems like I'm struggling even more. The side effects are the worst!!! The hot flashes, back& eck pain, horrible headaches, etc. I am very glad to know I'm not alone!! I really wish they could find a cure. My chance of having children is only 42.6& and that really bumms me out cuz I have always loved kids& and wanted 4 or 5 of them someday. I am g ad to other women I can relate to!! Thankyou for being here!! I keep looking to stay strong and hope that there will be better treatment someday in the future!! STAY STRONG!!!

Kelley Webinger - 10/30/98 03:54:58 How You Found Me: surfing

Comments: I have browsed through your info. It is great!! I feel alot better knowing I'm not alone. Endomitriosis is all new to me. I was diagnosed in May of 98, and My doctor says that I've mostly had it for 2 yrs. already, and I have a severe case. Its hard to st y strong, but i'm glad that I have someone else tp talk to that knows what its like. I'll be 20 yrs. old on Apr. 2nd and I hope I can be well enough to celebrate. thanks again I feel much better knowing I'm not alone!!!

Shalena Conder - 10/25/98 00:17:26 My Email:s_conder@hotmail.com How You Found Me: endo search

Comments: I am 18 and have had endo for 6 years. I too have had many bad experiences with bc pills. I finally found one that works for everything except constant pain. Thank you for this site and your courage.

ALISON ROBSON - 10/12/98 08:06:00 My Email:robson@cn-newc.com.au How You Found Me: endometriosis

Comments: I AM ALSO AN ENDO SUFFERER, IT WAS INTERESTING TO READ YOURS AND OTHERS EXPERIENCES OF THIS DREADED CONDITION. IM CURRENTLY TRIALLING IVF TREATMENT HERES HOPING ALL THE BEST TO YOU AND YOUR HUSBAND YOU CAN CONTACT ME IF YOU WISH AND I CAN SHARE MY EXPERIENCE FROM AUSTRALIA

Laurie Fritz - 10/11/98 12:10:46 My URL:http://mrusn@mailecite.com My Email:mrusn@mailexcite.com How You Found Me: websearch

Comments: Thank You so much for making this page. I suspect that I am suffering from endo & will hopefully find out this week. It is scary But I need to know something. It helps to know that I am not alone. Thank you & all the people who left thier stories here. Go d luck to you all & may God bless!

JODI SCRIBNER - 09/15/98 15:24:31 My Email:jodis@wheeleroil.com How You Found Me: yahoo

Comments: Thanks for the info. An aquaintence recently confided in me that she had endometriosis and I wanted to know more about it.

Cathy - 09/13/98 00:30:30 My Email:cathy.cagnina@gte.net How You Found Me: GTE

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debbie newport - 09/10/98 11:15:45 My Email:debbie.newport@dial.pipex.com How You Found Me: Endo web sites

Comments: Thank you for taking the time to create your web page as it is really reassuring to know that I am not alone in this battle........cheers

Kathy - 09/08/98 22:39:42 My Email:kgrauberger@msn.com How You Found Me: surfing

Comments: Diagnosed with fibriods, cysts, PID, everything, tried every b.c. pill under the sun. Changed doctors -- described pain and frustration. First visit he said he suspected endo .. scheduled laproscopy .. confirmed endo. Taking Lupon .. shot #4 tommorrow. Pain is much better. Side effects suck! Can't sleep (nite sweats are bad), headaches are pretty bad (need precription pain killers). Depressed but not sure whether it's the lack of sleep or Lupron?! I know the pain is so much better ... but as a have another hot flash come over me I'm not sure I'll finish the 6-month treatment.

- 09/08/98 22:32:48

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Nichole Zurgable - 08/26/98 21:56:07 My Email:nzuegable@cvn.net How You Found Me: surfing

Comments: I have not been offically told that I have endo. My Dr. thinks it is a big possibility and I am having surgery in two weeks after the regular hormone therapy that did not work. Thank you for the info and I am hoping things turn out okay. Nichole

Dana - 08/20/98 03:01:17 My Email:Danas@primenet.com How You Found Me: info re; endo Comments/Suggestions: i am glad i am not alone

Comments: i am to have surgery with the laprascope on wednesday i am very scared. i have had pain for 2 years. i was hoping that the pain would go away on its own but no luck. I have gotten used to the pain. somedays are bad and others are good. I ride my horse on the bad days. I figure "hey i already hurt i can enjoy riding today". Riding makes me happy and that has helped alot. I am taking DANAzol male hormone and the pain is better but not gone . May be the surgery will rid me of the pain if not i will go Riding (a long ride this time)again. SMILE

Dana - 08/20/98 02:58:06 My Email:Danas@primenet.com How You Found Me: info re; endo Comments/Suggestions: i am glad i am not alone

Comments: i am have surgery with the laprascope on wednesday i am very scared. i have had pain for 2 years. i was hoping that the pain would go away but no luck. I have gotten used to the pain and somedays are bad and others are good. I ride my horse on the bad da s. I figure "hey i already hurt i can enjoy riding today". Riding makes me happy and that has helped alot. I am taking DANAzol male hormone and the pain is better but not gone . May be the surgery will rid me of that if not i will go Riding (a long ride t is time)

Dana - 08/20/98 02:45:43 My Email:Danas@primenet.com How You Found Me: friend Comments/Suggestions: thank you for the info

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Danelle - 08/19/98 23:18:28 My Email:dmaboud@oakland.edu How You Found Me: Looking around Comments/Suggestions: Thanks!!

Comments: HI, MY NAME IS DANELLE, I AM 21 AND HAVE BEEN BATTLING ENDO SINCE I WAS 15. I HAVE BEEN ON BC PILLS, LUPRON, DARVO, PROGESTERONE, AND MANY OTHERS. I WENT TO 11 DIFFERENT DOCOTRS BEFORE I FOUND OUT I HAD ENDO. I HAVE PAIN EVERYDAY OF MY LIFE AND HAVE HAD TO HAVE 3 LAPOROSCOPYS. I SPEND EVERY DAY WONDERING IF I WILL EVER BEABLE TO HAVE KIDS, MY DOCT R SAYS I ONLY HAVE A 50/50 CHANCE. KIDS ARE THE ONLY THING I EVER WANTED IN LIFE AND NOW THANKS TO THIS WONDERFUL DISEASE I MAY NEVER HAVE THEM. JUST WANTED TO SAY GOOD LUCK IN ALL OF YOUR BATTLES-I FEEL YOUR PAIN AND FEEL FREE TO E-MAIL ME, IT WOULD BE ICE TO HEAR FROM SOMEONE WHO ACTUALLY UNDERSTANDS HOW I FEEL.

Kari - 07/30/98 00:51:53 My Email:ck-arnod@cac.net How You Found Me: browsing for support Comments/Suggestions: I been there and...

Comments: Hello, my name is Kari and I am 22 years old, married no children. I've been through basicly everything you've stated except the bleeding during intercourse (but I don't have much sex because of the pain) I was diagonised (sp) when I was 18 howver I had been having problems since I was 12. I went on Depro & Lupron and all they caused was weight gain, I gained a total of 80 to 100 lbs within a 1 1/2. The weight has been hard on my back and hard on my self confidence I've had to buy new clothes and the w ole nine yards. The doctors have basicly told me to have my kids and have my parts removed to hopefully releive my pain. Last December I went through the fertility process (ZIFT) my husband and I have to go to fertility doctors. The procedure was unsuc essful at that time I had my 2 lap. which they found not much new endo. but I was still having extreme back pain. Since then I have been unable to try again for a baby due to the cost. I have started to have the extreme back pains and drainage (even t ough I am on birthcontrol (Nordet) which seem to help in the beginning. along with now mirgaine headaches and depression because of the pain and all the problems this disease is causing me. Please let me know if you have any suggests or if I can help you out in any way. Thanks. Reading these stories make me feel like I am not alone.

Greg Bosaz - 07/20/98 21:35:57 My Email:bosazga@pweh.com How You Found Me: yahoo Comments/Suggestions: great page!

Comments: I'm the 29 yr old ex-husband of an endo patient who, unfortunately found-out about her problem after it helped (I'm positive) ruin our marriage. It's partially our fault that it happened too quick, but I'm trying to help my (ex)wife now, knowing that it r ally wasn't her fault. I'm also helping because my Mom had this problem (with many others) several years back, so I can understand her frustration (not real-time, but I'm trying). Anyway, she's gonna try Lupron with the hopes that it'll destroy what has r mained on her organs after her Laparoscopy. I found your site quite informative, and will tell my wife about it if she hasn't seen it already. I can only hope that more research is done on Lupron or other alternatives, because it sounds like Lupron can ca se more harm than good. But you don't know until you try. Your site also gives me the patience to help her, with the hopes, of course, that maybe it'll help us as a couple, maybe a family too, but that's not as important as HER! I can only hope that it wa the endo that caused our problems, and that one day soon her pains can end--- temporarily at least. I'll keep doing research and checking the page for new info, but any advice you can give me / us would sure help.....

Kerry - 06/27/98 20:46:03 My Email:kerrye@worldnet.att.net How You Found Me: searched endo

Comments: I have had this all my life, have had the surgery, and the induced "menopause" - was awful! Now, at 41, am wondering what to do, as symptoms are coming back. Surgery was about 7 years ago, and it took about 7 months + to receover. BCP is what I use now but sometimes I can feel the adhesions swelling and hurting. This disease has really affected my life, and it should have more research money and cure efforts devoted to it.

Nichole Herbert - 06/23/98 19:00:56 My Email:nls@cdc.gov Comments/Suggestions: I think your story is great!

Comments: I know exactly what you are going through. I am 24 years old and I have been through 3 laporoscopys, Provera, Lupron, BCP's, and I am now seeing a new doctor about what is my next step. All of this has happened since May 95'. I am happy to say that I d have a little girl that just turned 1 years old on June 19, 1998, but I just wish that I could get rid of this crap!

Vicki - 06/16/98 23:13:03 My Email:vkirby@teleprocessing.com How You Found Me: looking for endo web site

Comments: I wish you all the best. I also have endo and have had a lap and have been on lupron. I am trying to get preg. My motto is that every day is a new beginning and I am one step closer to betting this. God bless and I wish you all the best

michelle J - 06/13/98 08:38:44 My Email:chelle@fm-net.com How You Found Me: browsing endo info

Comments: it really does help to read other women's personal stories about their struggles with endo. i was diagnosed with microscopic endo in january. i strted having symptoms similar to yours and was also misdiagnosed as having irritable bowel 6 years ago. i ha e gone through mutiple trips to the hospital, laparoscopy which showed only many many adhesions, bc pills, and now i am on lupron. it was amazing. i started lupron the end of jan. my symptoms were gone in 1 1/2 months and have been gone ever since. i is hard to deal with the hot flashes and weight gain but i would much rather have that than the excrutiating pain that i was having everyday of my life. i have been having trouble with cost though since my insurance company just does not seem to think i is a necessary treatment. i have one shot to go then i will see wht hapens. thank you for your story. good luck and take care. your are in my thoughts as well as are all the other women out there with the misfortune to have this disease.

Cindy - 06/11/98 00:02:41 My Email:sin@mn.igs.net How You Found Me: look for a familar story

Comments: Thank - youfor sharing your story. I know now that I am not the only one how peolpe think is nuts.

Jan - 06/10/98 14:24:25 My Email:dkominek@bgnet.org How You Found Me: endometriosis

Comments: I was looking for endometriosis info. I am also a teacher and I have a Boston Terrier. My kids are just as spoiled as our dog. We just hooked up to the net. I starting a classroom technology masters in July.

V. Phillips - 06/09/98 23:13:46 My Email:Valerie.Phillips@GTE.net How You Found Me: surfing under endo Comments/Suggestions: Great story and pages!

Comments: Doctors discovered endo while a cyst was being removed in Dec. 1995. I've been on BC pills since and most of the pain has lessened. The Endo Assoc. page explained other symptoms I have which I attributed to stress! Anyway, I love your pages, they're m rvelous. I teach 8th grade at-risk, ADD, ADHD, you name it. I can identify! Plus my husband is from Little Rock, and several people at our wedding were from Bentonville!

Michele Jansz - 05/31/98 02:13:30 My Email:jansz@worldnet.att.net How You Found Me: Dawn's Endo Forum Comments/Suggestions: Great site- Wonderful!

Comments: Hi, I'm Michele. I was diagnosed with endo in 1990, but had symptoms of the disease since my teen years. I'm 32. I have had 5 laparoscopies. 1 laparotomy and total hysterectomy at 28. Hysterectomy did not erradicate my disease. I have had 2 surgeries or Ovarian Remnant Syndrome. Endo was found in surgery for this complication. I am a fighter!! I have HOPE. We, all of us with this disease, need more research and physicians who specialize specifically in Endo and it's related complications. The battle continues. Women with endo go unrecognized as gifted people with extraordinary coping skills. Best Wishes to you all.

Penny Stirling - 05/13/98 23:43:11 My Email:stirling@wvadventures.net How You Found Me: Dream's Guestbook

Comments: I have endo for 7+ years and would for anyone to email me with their personal experiences.

janice - 04/10/98 03:00:15 My Email:jh@premier.net How You Found Me: just browsing

Comments: hi, my name is janice i also was diagnosed with endometriosis over a year ago . i was told because of how bad my endo was i would be lucky to have any more children but i was very lucky to get pregnant in march of last year and i had a very health baby boy and i and i am so glad i did now. see my baby was born in december and my endo came back in feb. there was nothing else i could do to make the pain go away so in on april 2nd i had a hysterectomy. my doctor was so shocked to see how fast the endo had spre d in such short time . i know being that im only 28 that is kind of young to have a hysterectomy but i have the family i always wanted and i feel comfortable with my decision. i would love to hear from you . thank you, janice holdeman

karen trask - 03/29/98 00:22:34 My Email:karen@aiusa.com How You Found Me: power forum link Comments/Suggestions: fun

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Lucy Newton - 03/22/98 05:13:20 My Email:cuauhtl@ibm.net How You Found Me: searching endo info

Comments: hi! i'm a 24 year old woman who has secondary infertility and great pain due to endo, now i'm on zoladex treatment feeling pretty bad and looking for information about the success rates and other treatments that would also help me to get pregnant. Do you now anything? Thanks for your time and help. Lucy :)

A.G. - 02/07/98 23:02:24 My Email: How You Found Me: Searching Internet about endo

Comments: I have been just diagnosed with endo, had a laparoscopy last Saturday. For the past 7 months I have been in the hospital 3 times. As a result I feel depressed since I will Have to go through a menopause. Now, I feel a little better to read about people th t have the same disease. Thank You for your Web site!!

Stitcher - 01/17/98 16:50:31 My URL:/SouthBeach/Marina/9849/ My Email:kathry49@idt.net How You Found Me: You twisted my arm!!! *lol*

Comments: Great page!!! Hey, feel free to add a link if you'd like to my Educator's Chalkboard. Just add educ.html after the HP addy, OK? We don't bump into each other as often as we used to, but it's always great chatting with ya at TG!! *HUGS*

Kim Dixon - 01/09/98 21:41:11 My Email:kdixon@kirksey.nwsc... How You Found Me: you!!! : )

Comments: This is absolutly incredible! You are incredible! I am so impressed with your computer abilities as well as with you as a person!

Beej - 12/24/97 16:25:38 My URL:http://www.tottv.com/beej How You Found Me: Jesus told me.

Comments: Manus! You've come a long way, girl. Great job on the site. You've been such a rock...*kotc*

Donnie Houser - 12/19/97 19:57:29 My URL:http://www.geocities.com/Yosemite/8901 My Email:houser@lads.net How You Found Me: You told me!

Comments: Hi gal....nice start on your page!! Tell Cody happy hunting!! Catch ya at TG! RR

Lisa Copen - 12/19/97 04:01:05 My URL:http://www.ixpres.com/jlcopen My Email:lcopen@ixpres.com How You Found Me: endo web ring

Comments: I'm browsing, don't have endo, but have rheumatoid arthritis and am checking out some other health sites. Please drop by my site when you have time!

SharonMarie..AKA Lady Jane - 12/18/97 18:24:41 My Email:srice@mailexcite.com How You Found Me: you

Comments: thankyou for sharing this with me.. You did a nice job. I really need a new kirby

gryphon - 12/18/97 16:24:27 My Email:gryphon16@earthlink.net How You Found Me: you forced me to come here *lol* Comments/Suggestions:

Comments: Rachel...really like your page..glad i had a chance to see you before the holidays started...wishing you and all of yours a very Merry Christmas and happy and Safe New Year!

colin wonder llama campbell - 12/17/97 23:43:50 My URL:soon to be made My Email:f3m8c2wl@coastalnet.com How You Found Me: psychokinetic telepathic drugs forced upon me by the CIA Comments/Suggestions: drink tea before bed at night

Comments: Hey Rachel!!! i actually really like the page..which is unusual for personal web sites..it is very mellow and not distracting or abrasive.. applause talk to you soon colin

Frances Stevens - 12/17/97 19:51:24 My URL:http://endo.home.ml.org My Email:grendel@xtra.co.nz How You Found Me: You asked me to visit!

Comments: Great pages, great attitude, great Rachel.

Ronna - 12/17/97 17:04:37 My Email:rpine@erols.com How You Found Me: Karen told me! Comments/Suggestions: very nice

Comments: Rachel, I enjoyed reading everything here! The only good about endo is knowing people like you! Keep up the good work,I will be back again.I very much,enjoyed the pictures,too! Your Friend Ronna

Karen - 12/17/97 16:43:52 My URL:http://user.fundy.net/tyr/ My Email:dream@fundy.net How You Found Me: You sent me Comments/Suggestions: Great!

Comments: Rachel you have a wonderful site here,lots of information! You have a wonderful way with words. I'll be back often. See you on ICQ. Hugs Karen