Angelika R. - 12/16/00 02:40:24
My Email:ubique@home.com
Comments:
I can't start to imagine what you have gone through. And how wonderful of Fritz to donate. I am from Germany and live since 1994 in Canada. My best friend's son who is ten years old was just diagnosed with Aplastic A. I hope I can help her as much as possible. All the best to all of you.
Daniel Cheng - 12/05/00 09:03:48
My Email:punanicheng@yahoo.com
Comments:
we share many similarities steven. for one we both have the same birthday, may 22, although i was born in 1982. more importantly we share the same illness, severe aplastic anemia. i feel relieved for you and your family that you have endured this horrif
c journey. may your future be bright and full of challenges. And to the parents, let him grow and mature as if he was a normal kid, but make sure he understands his situation, as you know, ignorance and can be very costly. may you all have a long and he
lthy life.
-MR. Daniel Cheng
Sara - 12/04/00 23:13:58
My Email:sarar@dol.ie
Comments:
Hi Steven, I am a nurse teacher from Dublin in Ireland and your brave story has helped me to teach aplastic anaemia to my students in a meaningful way. Your site is really beautiful and must be a great comfort to other families and sufferers of aplatic an
emia. Good luck
paul bartholomew - 11/22/00 19:03:21
My Email:paul@marlings.fsnet .co.uk
Comments:
Your site is lovely! i have just returned from southampton general hospital england where my 6
year old daughter Anna is with my wife. Anna was
diagnosed with aplastic anaemia just over 3 weeks ago and i think we are still in shock! I chose your story because your son is a similar age to Anna (born 25.4.94)and i am glad i did - the photographs are super. Unfortunately Annas sister sarah was not a
match and therefor drug treatment
started yesterday. Your description of a nightmare
is so true and like any parents we are so so worried - your story however gives us hope.
Yours sincerely Paul Bartholomew
brittney doucet - 10/03/00 01:54:47
My Email:www.mclain-doucet@cox-internet.com
Comments:
my name is brittney doucet.i am from crowley,louisiana.i am in 6th grade at crowley middle school.i am 12 years old.i am very amased
at the courage you have to save a little boys life.well gotta run if u get a chance e-mail me back
god bless,
brittney doucet
brittney doucet - 10/03/00 01:54:44
My Email:www.mclain-doucet@cox-internet.com
Comments:
my name is brittney doucet.i am from crowley,louisiana.i am in 6th grade at crowley middle school.i am 12 years old.i am very amased
at the courage you have to save a little boys life.well gotta run if u get a chance e-mail me back
god bless,
brittney doucet
daffie - 08/03/00 22:34:25
My URL:/gjlcg
My Email:daffie@rocketmail.com
Comments:
I am so happy Steven is doing so well. Was just checking in on him!
Sheree Capellaro - 08/01/00 16:29:32
My Email:sheree_capellaro@countrywide.com
Comments:
Just checking on you! You are still in our prayers and we hope everything is great!!!!! Take care and hope to see new pictures soon!!!!
Denise Landes - 07/24/00 21:11:27
My Email:dlandes@topeka.org
Comments:
Our good friend has a 17 yr. old with this diease. His sister is not a match. He is starting a treatment which will take 10 days. His Mom, a nurse, is completely shattered by it all.
Hopefully a bone marrow donor could be found for him. What a wonderful Web Site. I will let her know.
Richard Marriott - 07/19/00 03:08:44
My Email:rvem@juno.com
Comments:
Amazing story! I don't know what "6 out of 6" means, or mhow a score like that can change (like to "3 of 6."
It would also help to explain what "cord blod" is, what it can do, and who saves it and how?
Steve Thomas - 06/19/00 05:02:43
My Email:sthomas@cuttingedge.com.au
Comments:
Hi, my daughter Georgina was diagnosed with ALL on Jan 31st this year. I appreciate all the work you have done to keep your web site up to date. I live in Brisbane, Australia. Good luck with everything in your life.
Steve Thomas
Heinz Haupt - 05/27/00 06:44:53
My URL:http://www.haupt-haren.de
My Email:haupt-haren@t-online.de
Comments:
Hy Steven, we`ve read this morning about your`s german friend Fritz Hopster in the news paper "Meppener Tagespost". We are very proudly about your new life and healthy.
My children are 5, 8 and 10 years old.
By by Steven
from fam.Heinz Haupt, Haren-Ems (Germany)
SaMndra Green - 05/23/00 14:53:48
My Email:sgreen@en.com
Comments:
Keep the faith.
Marleen Miller - 04/18/00 23:39:34
My Email:mareenr@webtv.net
Comments:
God Bless all of you.
nadine - 04/17/00 12:09:32
My URL:http://www.pretor.de
My Email:pretor@misterk.de
Comments:
Hi steven and family!My name is Nadine, Fritz is the grandpa of my son Noah Justin.Noah was born on january 17th 2000 and he is healthy.Thanks God!! Iīm very proud of Fritz.Good bless for you and your family and nice greetings to family Hopster nadine&n
ah
nadine - 04/17/00 11:49:09
Comments:
Caren - 04/14/00 18:46:12
My Email:Borninpa@aol.com
Comments:
Thanks for the story....my cousin was just diagnosed with AA and unfortunately his brother is not a match for BMT...he just started drug therapy which we are all hoping will help...he will turn 20 on april 18...and hopefully will be home from the hospital
and starting the road to recovery....in the meantime, he is fighting low grade fevers...our family is praying for a donor match for him since the doctors say it's his best chance...please keep my cousin kenny in your prayers too...
Kim - 04/13/00 19:44:46
My Email:kim22@tesco.net
Comments:
Hi everybody, especially Steven. I too have Severe Aplastic Anaemia and was diagnosed 12 feb 1999. I am doing ok now, although my platlets are dropping (still on Cylosporin)I'm ok.
keep up the good work
from
kim
Mary Dail - 04/12/00 12:55:21
My Email:ZWufpak@aol.com
Comments:
What a beautiful story!! I am a Bone Marrow Transplant Nurse and enjoyed reading about Steven's progress. God bless you for taking the time to write about it and allowing us to read about another miracle from God:o)
Take care, Steven. You are in my thoughts and prayers. I love you!!
Beth - 04/08/00 15:35:56
My Email:bbourd@hotmail.com
Comments:
Amazing what our life journeys bring to us. May your lifes be forever enriched.
Julie Gilbert - 03/28/00 16:03:39
My Email:stevejulie10111@webtv.net
Comments:
Thank you for your story. Three weeks ago we found out that my grandaughter Brooke has aplastic anemia. As you know we are going through hell. She just finished her four day treatment yesterday and is going home today. Your story will help all of us. W
are reading everything we can to try to understand as much as possible. God bless all of you, especially Steven.
Toni Anderson - 03/28/00 01:38:30
My URL:http://homestead.juno.com/tonianderson
My Email:tonianderson@juno.com
Comments:
Dear Steven, God bless you and your family! You are a miracle! I was so encouraged to read how God has kept you and brought you through such a difficult time. I know He will continue to strengthen you. He has a wonderful plan for your life! I have add
d your page to my Aplastic Anemia links. I hope that is all right with you. I will be praying for you and your family! God bless you! Love, Toni <*(((><
Lana DeLong - 03/23/00 06:39:01
My Email:lana.delong@pressroom.com
Comments:
wow! What a great web page! I know that you and your family have been through the ringer with Steven having AA. So have mine, but through it all isn't it wonderful to have a religion to help us make it through every day no matter what happens. I suffer
d from AA for 10 years. I just recently got a BMT in December and feel like a million bucks. E-mail me anytime.
tina frey - 03/19/00 01:30:51
My Email:tf38@yahoo.com
Comments:
Hi Steven, I hope this finds you happy and healthy.My neice brooke has been sick with what they think is aplastic anemia. She is 2 yrs old. Good Luck to you and your family and God Bless you all. Tina
Rebecca McDaniel - 03/13/00 17:27:27
My Email:Reebokm@hotmail.com
Comments:
Thank you for putting Steven's story on-line. I am a student physical therapist assistant working on a research paper for one of my classes. This site has been both a blessing and an inspiration. May God continue to bless you and grow Steven up to be s
rong, both physically and spiritually.
In His Grip,
Rebecca
Stefano and Stephanie - 02/25/00 22:57:37
My URL:http://http://memberpage.women.com/spirituality/assurances/stef.html
My Email:stkramer@tin.it
Comments:
hey,Steven--what a coincidence that your name is the same as my son's--only"Stefano"is Italian(I'm Stephanie,his Mom)...ad he's 31--he was dx'dMDS;then later SAA,had a stem-cell transplant from his sister Mery in June,is doing well
--very best wishes to you!
Danielle Wooten - 02/22/00 19:29:26
My Email:wooted@champint.com
Comments:
Congrats on Steven's recovery! I am weaning off cyclosporine at 1 year out from ATG. I guess this is the hold your breath stage!
Jen - 02/02/00 02:07:16
My Email:briandjen1@aol.com
Comments:
Just came across your story by accident. It made me cry. I know that life doesn't always make sense and I was so encoureaged by your mom and dads persistance with the doctors. I will be praying for you steven. My heart goes out to your whole family.
ever loose your faith. Jesus knows exactly what you are going through. If you have any praise or prayer requests concerning your condition just e-mail and I would consider it a privelege to pray on your behalf.
Sincerely,
jen
Aunt Barb, Uncle Marty - 01/19/00 02:43:16
My Email:bkoss@shianet.org
Comments:
Dear Shannon and Scott,
This is such a wonderful way to remember all the events in your lives. There is so much information that you've captured for Steven and Serena to treasure as they get older. We hope you keep adding to it, and updating it for all your family to see.
Thank you for sharing your lives with us.
Love,
Aunt Barb and Uncle Marty
Joseph Hopster - 01/19/00 01:22:26
My Email:Jhops25245@aol.com
Comments:
Patricia Grove - 01/18/00 15:46:46
My Email:RLG1977@aol.com
Comments:
Steven, your web page is very inspiring. I'll put you and your family on my prayer list for your continued health and a long and happy life. I came to your web page because I was searching for inspirational stories to share with people I'm trying to recr
it onto the donor registries. My sister-in-law, Jessica, has ALL, Philadelphia Chromosome Positive, and needs a BMT. Her mom is a partial match and could possibly be used. Right now we're searching the donor registries. We're holding a BIG donor drive
this weekend in Alabama. God Bless you. Patricia
mechelle bartussek - 01/13/00 19:35:26
My Email:mbartussek@idmail.com
Comments:
What an inspiring story! I am 32 and have had SAA for 18 months, Ive done 2 cycles of ATG. The last was 4 months ago. I am waiting and praying for my counts to rise. They are very low right now, but I havent had a transfusion is 9 weeks! I do not have
sibling donor, but I do have a matched unrelated donor (6 out of 6) if i need to take that road. God bless.
Julie Mansfield - 01/09/00 04:12:41
My Email:mansfieldjulie@hotmail.com
Comments:
Hello! I loved reading your story and can join with you in happiness that you are doing much better now. I live in Australia and have AA also. I'm doing heaps better after my treatment too. Thanks for sharing your experiences with me.
Have a great year 2000! - Julie
Glenda Wolmarans - 01/05/00 10:27:56
My Email:xy16908@oldmutual.com
Comments:
Shavon Morton - 12/27/99 09:41:14
Comments:
I am 14yrs old and was diagnosed in May 1996, we all went through the same as Steven.
Good luck.
Shavon
Richard Moreno - 12/20/99 23:05:06
My Email:Ram2724@aol.com
Comments:
To Fritz's and his wonderful family. May god bless you and your family, people like you make this world a wonderful place. Merry Christmas and Happy New Year.
Karen Michaels - 12/14/99 19:17:27
My Email:karen@litexcorp.com
Comments:
Your sight is Great!!! I can see you spent a lot of time on it, and It's cute how you kept the Winnie the Pooh theme.
God Bless you and your family,
Karen Michaels
Eddie Coleman - 11/30/99 18:40:40
My URL:http://www.expage.com/page/aplasticanemia
My Email:Taddered14@yahoo.com
Comments:
Hello good to hear things are going Well i am going on 11 mounths out of transplant!
my sister was a perfect match for me please contack me o would like to talk mt screen name online is taddered14 im me some time!!!!!!!
Adam and Dorota - 11/23/99 06:27:17
My Email:abartos@core.com
Comments:
Hi Steven!
We are glad and we hope that you are at the end of a tunnel and from now on there will be only a sunshine in your life. Unfortunetly our son (19 months old) Jacob is at the entry to this tunnel...We hope that everything will be all right and we will use y
ur example as a good sign.
For your parents:
How did you react when you learned about it?
How did you reorganize you life?
How did you separate Steven from any sourses of infections or viruses?
If you mind to take some time to answer our questions we will apprecitate. For us it is just a beginning. We don't know what to expect, we don't know how to deal with it or how to take care of our only son in present situation. It is a puzzle and we are l
oking for any information we can get.
PS Hey Steven!
You have a cool web site!!!!!!!
Michael Donivan - 11/10/99 21:42:06
My Email:mdoniva1@rochester.rr.com
Comments:
I am a 41yr old male w/MDS RARS. I wish the best of luck and my hopes and prayers are with you.
God Bless.
Kimberley Brennan - 11/09/99 18:55:22
My Email:Kimberley_brennan@yahoo.com
Comments:
Very touching story.....all the best.
rick - 10/23/99 00:59:50
My Email:simple5903@aol.com
Comments:
Our grand daughter has aplastic anemia and we too had the atg treatments that didn't work. we just finished the chemo treatments last week. this week she is in the hospital with the fever and all they told us she would get. thank you so much for your stor
. one must know that there are not always good responses to treatments and that there are others available. we hope he continues to do well. we will keep him and so many others in our prayers and hope you will do the same. again we thank you for your stor
. :)
Joyce Miness - 10/06/99 16:37:48
My Email:joyce.miness@poyryusa.com
Comments:
In August of 1997, we took my then 18 year old daughter to the doctor with severe brusing- no other symptoms- she had energy and felt fine. We were rushed to a pediatric hematologist, Dr. Jayabose a Westchester Medical Center (the best dr. in the world!)
The following week she was diagosed with severe aplastic anemia. Theythought it might be Fanconi's anemis- thank goodness it wasn't. Luck was with us- our 17 year old son was a perfect match and the transplant happened on Sept. 1, 1997. Today, my dau
hter is doing great. You'd never know she had been ill- her recovery went very smoothly. I am glad your son is doing well- we pray for all these children to continue to do well and live long, and healthy lives. Good luck.
Beckie Bartell - 10/05/99 18:04:47
My Email:becs_1@hotmail.com
Comments:
My boyfriend was diagnosed with AA two and a half years ago. Like Steven, he too was miraculously healed by the grace of God... and has also suffered a relapse. Brandon,17 years old, has no bone marrow matches and the doctors say that Chemotheropy is hi
only hope. After praying for another miracle for six months, we finally decided that he should do the chemo. He started this morning.
I am thankful to God and to you that I found your webpage. It has truely given me hope. Thank you and God bless.
Beckie Bartell
chris - 10/02/99 11:21:02
My URL:http://members.xoom.com/hsh2
My Email:csey@erols.com
Comments:
Hi there I enjoyed my visit. Please visit me sometime thanks.
|
Comments:
With two grown sons who have PSA and a daughter from whose web site I accessed, I found your story and fight movimg and rewarding. The best of luck and health for Stephen.
SR
Sue - 09/11/99 23:28:19
My URL:http://www.angelfire.com/ca2/GayleMarks
My Email:suekizer@lodinet.com
Comments:
Comments:
Hi
Just learning the computer...sooo glad that I was able to get here!! Our prayers continue to be with all of you.
Kem Hillblom - 07/29/99 14:56:02
My Email:haybabe@prodigy.net
Comments:
My husband is facing a Stem Cell Transplant maybe in September. We are still wating to find out how much more chemo he is due to have. He too, will be entering UCLA. We live about 2 hours away.
He was first dx with Non Hodkins Lymphoma 6 years ago and enjoyed a 5 1/2 year remission.
I cannot imagine going through this with one of my children, yours are absoluetely beautiful, and no child should have to endure what Steven has, enoy him and looks like things are going smoothly, and give hime a little kiss for me.
Kem
Glenn - 07/26/99 04:43:47
My Email:pace@garlic.com
Comments:
I was surfing through the AA pages and came to Steven's Home Page. It brought back many memories of when I was nine years old and was told that I had aplastic anemia. The memories never seem to go away but I was very fortunate and was completely cured,
ven after I was sent home from the hospital to spend my last Christmas with my family. I am now 61 years old and I have not had any symptoms since around age 12. Since I seem to be one of the more fortunate victims of AA, I wish there was something that
I could do for others who are still suffering.
My wife and I have two great boys, age 26 and 31 and we were very concerned that I might pass this AA disease on to them. Fortunately this did not happen and they have both grown up to be healthy and free of any diseases.
Even after 50 years, hardly a day goes by that I do not think about my bout with AA. I just wish there was something that I could do for others. I keep thinking that since I was cured, perhaps I have something in my blood that could help others. A lot
f people helped me when I needed it by giving blood and doing whatever they could for me.
Forgive me for rambling a little here, but even after all these years I still get a ittle emotional when I discuss the events surrounding my years with aplastic anemia.
Tell Steven not to give up hope. I am a living example that this disease can be completely cured.
The best of luck and good fortune.
Sincerely,
Glenn
Mingan96 aka Little Wolf Mom - 07/21/99 06:08:33
My URL:/RainForest/Wetlands/2012
My Email:Mingan96@hotmail.com
Comments:
Hi sweetie; I was surfing when I came to your page. I've been going to alot of sites and have seen your friend Paige's page. God loves all little children and with faith and prayers all things are possible.
Comments:
Hi sweetie; I was surfing when I came to your page. I've been going to alot of sites and have seen your friend Paige's page. God loves all little children and with faith and prayers all things are possible.
Comments:
Steven's progress is so encouraging. Our four year old son, Michael, was just diagnosed with SAA. He is going through the same treatment regiman as your son did (His brother and sister were only 4 of 6 and 1 of 6 matches). Your story gives us hope!
Donna & Rebecca - 07/10/99 11:45:44
My Email:donnasiemsen@hotmail.com
Comments:
Congratulations on your match and we wish you ongoing high counts and good health!
Liudmila - 07/07/99 18:48:22
My Email:kondrasheva@mail.ru
Comments:
Dear Fritz,
It is great to save a child's life.
I wish all the best to you and your family.
Liudmila
Mother of Ivan (6), SAA
Russia
- 06/24/99 05:02:28
Comments:
tobias - 06/22/99 19:25:24
My Email:From Hopsterīs
Comments:
Hello peoples!!!
The son of fritz Hopster try to send you an Email. i donīt know if you get it?!Perhaps you can call us, when you read it!!!
Thanks!!!!!!!!!!
Ilka Hopster - 06/04/99 19:45:52
Comments:
Hello Steven and family!
This is Fritzīs daughter Ilka writing. It is 4th June 1999 and we (my boyfriend and I) have just read your wonderful homepage. Especially the photo of Fritz is interesting for us.
I hope you will read this message and we will get in contact to each other soon.
Best wishes from our whole family! Ilka
MARIE LOW - 05/30/99 12:58:38
My Email:CHOWKW@TM.NET.MY
Comments:
God will heal Steven in his own special way.
Maureen Butina - 05/20/99 10:39:28
My Email:Quilk7@aol.com
Comments:
Daughter of Sam,78, dx.3/99 MDS who is not doing well. really great web site my prayers are with you all.
Maureen
Debra Longobardi - 05/07/99 19:56:51
My Email:longobardi@prodigy.net
Comments:
My baby, Matthew, was diagnosed with AA May 98 at 11 months. He received ATG, CSA, Prednisone, and GM-CSF. Responded immediately. Off meds since Dec. Counts normal. God has truly blessed us. God bless Steven and all the special people in his life.
'll pray for you all. Debra
Tammy Makela - 05/05/99 05:10:22
My Email:Wild_Flower@spry.com
Comments:
When I first joined the AAMDS list you e-mailed me. I don't know how I could have missed your message or forgot. I would really like to e-mail with you privately. My son Taylor born 6-29-94 was diagnosed with AA in 7/97. He responded to ATG, cyclo, pred.,
but relapsed in 1/98. He is doing well, but I'm afraid because he is stopping his cyclo in two days (doctor's orders). Thank you for your web sight and Steven's courage. Lets talk. Sincerely, Tammy Makela Wild_Flower@spry.com
Steven Haberman - 04/29/99 02:41:27
My Email:habermas@purdue.edu
Comments:
A wonderful story of bravery and faith! I'm a 22 year old senior at Purdue University and I'm giving a persuasive speech in a class on organ donation. Your story gave me a perspective on how precious a young life is, and how it can be saved. Hopefully oth
r students will see how important organ donation is. Best wishes and good health!
Karen Eppler - 04/28/99 13:31:19
My Email:kepplerdysfree@webtv.net
Comments:
A true Blessing to read of your ups & even downs throughout your journey. I do pray the Lord will keep ALL of you on the UP side of this disease.
I was dx MDS/RAEB 9/97 & know of the ups & downs we experience.
My prayers will continue for the 4 of you, Karen
Kelly Winner - 04/15/99 20:43:38
Comments:
I'm visiting you through a link from Travis Yon's website (www.keeptrying.com). I'm a friend of Travis, and registered to be a donor about 6 months ago.
I wish Steven and your whole family good luck, good health and long life!
James Olivella - 03/17/99 15:23:29
My Email:FORRIVJIM@AOL
Comments:
THANK YOU VERY MUCH FOR YOUR DOCUMENTATION OF STEVEN'S JOURNEY. MY NIECE WAS DIAGNOSED ON MARCH 15TH WITH A.A. WE BELIEVE HER SISTER IS A MATCH FOR BONE MARROW BUT STILL TESTING. STEVEN'S STORY MADE ME REALIZE THAT THIS CAN BE A VERY LONG PROCESS. THANK Y
U AGAIN AND GOD BLESS YOU AND YOUR FAMILY HAVE A HAPPY EASTER
James Olivella - 03/17/99 14:59:23
My Email:FORRIVJIM@AOL
Comments:
THANK YOU VERY MUCH FOR YOUR DOCUMENTATION OF STEVEN'S JOURNEY. MY NIECE WAS DIAGNOSED ON MARCH 15TH WITH A.A. WE BELIEVE HER SISTER IS A MATCH FOR BONE MARROW BUT STILL TESTING. STEVEN'S STORY MADE ME REALIZE THAT THIS CAN BE A VERY LONG PROCESS. THANK Y
U AGAIN AND GOD BLESS YOU AND YOUR FAMILY HAVE A HAPPY EASTER
Yolinde Geeves - 03/06/99 08:43:21
My Email:yoyos@xtra.co.nz
Comments:
I am a 21 year old female Ski Instructor from New Zealand (down under) who was diagnosed in October last year and am hoping for success in my treatments also. I wish you good luck in your journey to recovery. Thank you for sharing your story.
Darlene - 03/05/99 20:37:41
My Email:jfords4@suite224.net
Comments:
God Bless Steven and family. We have a nine year old daughter who has had lots of medical problems.
But Emily has not had any thing as bad as Steven.
We feel blessed to have two beautiful healthy daughters. I very much enjoyed reading Steven's web page. You are beautiful people!!!!! I sure hope Steven is doing good and keeps getting better.
cynthia coffelt - 02/25/99 05:41:45
My Email:benjamin.d.gedeon@us.arthurandersen.com
Comments:
Steven-
Way to go!! You have amazing strength. My fiance is waiting to have his BMT in March. He is 24 years old and he has leukemia. Thanks for giving us the extra strength to keep fighting. God bless. -Cindy C.
Rayanna Dalton - 02/18/99 06:09:08
My Email:rdalton@kennett.k12.mo.us
Comments:
I am a 29 year old high school teacher from Missouri. I was first diagnosed with AA in 1994. I initially received ATG therapy - counts improved - looked like a cure, but I relapsed in 1996. I had a MUD at the U of Minnesota. I am the youngest of 7 chi
dren but had no related match. 2+ years out of transplant and I am doing well - only an occasional flare of GVH. I enjoyed your web page. You have a beautiful little boy. Bless you all.
Melanie Goldish - 02/10/99 03:19:38
My URL:http://www.keeptrying.com
My Email:tracerpub@aol.com
Comments:
Shannon,
My eyes are brimming with tears at the BEAUTIFUL pictures of your family! What a gift! I share your pain and your joy. What an amazing journey we both have been on, huh? Thank you for the web address. I'll ask our webmagician to link Stephen's in to T
avis'. Hugs and wishes for good health to your ENTIRE family.
Love,
Melanie (mom to Travis and Spencer)
Michelle - 02/07/99 03:20:27
My Email:ifull@aol.com
Comments:
Really appreciated your page! We have a diagnosis
of myelodsplastic syndrome on our 18 year old son and are scheduled for a second opinion in St. Louis in a few days. We've been pouring over every bit of information we can find. Thank you very much.
Danielle Chaikin - 02/04/99 19:05:31
My Email:dchaikin@hotmail.com
Comments:
Hi Steven,
I have the same birthday as you! I was born May 22, 1965.
My boyfriend has CLL (a type of leukemia) and he may need a Bone Marrow Transplant. We are going to visit the Doctors at UCLA to find out about it.
I hope my boyfriend is as brave as you!
I enjoyed your web page, especially the pictures of you and Serena. I have a big brother too, and I think Serena is very lucky to have a big brother like you.
Best wishes,
Danielle
Karolina Ugljesic - 02/04/99 07:41:54
My Email:kugljesic@sprint.ca
Comments:
Keep going,
God bless you.
Kraig Levang - 01/20/99 16:38:50
My Email:leva0029@tc.umn.edu
Comments:
Glad to see everything worked out Steven. I am a student at the University of Minnesota. I am from North Dakota and my mom is also recovering from a bone marrow transplant to treat AA. I hope everything goes good for you in the future. have fun!!!!
Robert Dean - 01/17/99 17:05:23
My Email:ltrcrdean@aol.com
Comments:
Not only did your web page look great I was encouraged by your story. Thanks and good luck.
Dr JH Sheikh - 01/09/99 01:41:20
My Email:Javed.Sheikh@BTinternet.com
Comments:
Deeply touched by the way you felt. I wish could have helped. Is our nightmare just beginning in Canada ? See my mailings to the list.
Javed
(Epsom Downs, Surrey, England)
Gary Rossbach - 12/31/98 07:49:13
My Email:KT3415@aol.com
Comments:
One of those long and sleepless nights on email! After all this time, I finally decided to visit you! I'm Zak's daddy, and he is on BMT +91 today and hopefully will be going home very soon! You sure have a cool website! I wish we had done one for Zak!
Well, I guess we'll be hearing more from each other sometime! Wishing you well! Zak and family!
David Tyson - 12/14/98 17:52:47
My Email:rdtyson@aol.com
Comments:
We have something in common. My 4 year old daughter had SAA and had MUD BMT on 11-4-98. All is OK with some GVH/central line complications. She was diagnosed with SAA 1-6-98 and has undergone ATG therapy also.
Anne Tooley - 12/14/98 15:57:25
My URL:http://www.geocities.com/~luminant
My Email:atooley@mindspring.com
Comments:
So glad to visit Steven's site! It's really cool! I especially like Rudolph's blinking red nose! My prayers continue for a complete recovery and a healthy happy life ahead!
kimberly tucker - 12/12/98 03:54:09
My Email:kt8793@aol.com
Comments:
Always remember that God is faithful and good. You and your family are in my prayers. May the force of the Holy Spirit be with you always and believe me he is.
Julie Swain - 12/08/98 13:36:23
My Email:jswain@bgf.com
Comments:
Hi Steven and Family,
I work with Bobby Hull and we are kept informed of your progress through your contacts with him. Just want to wish you a wonderful holiday and pray that God will continue to bless you. You are on our prayer list and will stay there until you get healed.
Love, Julie
NANA MODIN - 12/03/98 16:46:24
Comments:
Chris Messineo - 12/01/98 01:15:00
My Email:GiveMarrow@aol.com
Comments:
What a beautiful story. Steven, Mommy or Daddy did a wonderful job with this website. I pray for your total recovery. Remember, there are angels watching over you !!
Kellee King - 11/23/98 18:33:35
My Email:Dancasarus@earthlink.net
Comments:
I enjoyed reading about Steven. Your story is almost identical to ours, with the exception of the cord blood possibility!! Wishing Steven continued good health ~~Kellee, mom to Tyler
PAIGE - 11/06/98 00:43:05
My URL:http://www.geocities.com/EnchantedForest/Meadow/3933
My Email:Havafith@fayette.net
Comments:
Hi there Steven. My name is Paige and I have Apastic Anemia. I was DX Aug 18 1998. I started Bruising and bleeding from a loose tooth, and the blood blisters. I have had the ATG and other drug thereaps and I am now begining to respond to the gm-csf shots
hat I take every morning. But I know who is making me better!!!! I hope that I continue to respond to the treatment. I really hope that you do well to I know that it is hard,I had just started first grade when I got sick I did get to go 4 days and now I h
ve to stay home and take homeschool from my mommy and my first grade teacher. I am making very good grades and will hopefull pass to the 2nd grade. I will add you to our paryer list and ask all of my freinds and family to pray for you and your family. Kee
the faith and hope. LOVE Paige and Family
Cindy - 11/04/98 15:13:30
My Email:CHLafforth@aol.com
Comments:
What a beautiful web page !! I love the outlines and the moving graphics are really neat!
It's quite a tribute to Stevie, and his Mom and Dad and family who've hoped and prayed for the success of the transplants, and the strong spirit which grew out of the love for a precious young boy !
Tracy Brunette - 10/29/98 02:51:48
My Email:bruno1@dmci.net
Comments:
Hi Steven, I'll be praying for you, I have a daughter who is 4 and has SAA,and may be in need of a BMT, you give us hope.
David - 10/25/98 10:01:28
My Email:Nibor61@aol.com
Comments:
Hello Steven,
I enjoyed your web page very much. You are such a brave young man. I know what you have gone through because my little girl Katy has SAA also.
I pray the lord will bless you and your family for many years to come.
Kimberly Smith - 10/13/98 04:35:30
My Email:Azurecalm@aol.com
Comments:
Shannon, you did a beautiful job. I am so proud of you .... All I can say is wow, go sister go.
Paul - 10/09/98 04:59:53
My Email:ChuckLerue@aol.com
Comments:
Julie Carter - 10/07/98 22:16:20
My Email:jkcarter3@aol.com
Comments:
God bless you Steven! You are such a brave little boy, hang in there! I will pray for you! :)
David H. Liu - 10/07/98 05:26:58
My Email:daveliuh@yahoo.com
Comments:
God will be always with Steven and your family.
God bless Steven and will heal him completely.
Take good care of yourself.
Laura - 10/06/98 23:25:32
My URL:http://www.geocities.com/HotSprings/Spa/8581
My Email:Laura_S_T_R_A_W_B_E_R_R_Y@yahoo.com
Comments:
Your doing a great job with your homepage! :o) Keep up the great job. Your very special Steven.
God Bless,
Laura from aa-mds list
Henria White Dove - 10/04/98 15:47:31
My URL:http://www.whitedovemsg.com
My Email:whitedove@feist.com
Comments:
May you all continue to reap the rewards of the holy spirit and give to others as you have received.
May you have Peace, Love, Light and many blessings
Namaste and In Lake'ch
White Dove
Maren - 10/03/98 18:49:42
My URL:http://www.geocities.com/heartland/bluffs/2073
My Email:mar6732@aol.com
Comments:
Steven,
You are so brave and so strong! I am very proud of you! you and your family are in my thoughts and prayers.
Sheree Capellaro - 10/01/98 18:10:49
My Email:sheree_capellaro@countrywide.com
Comments:
Please thank your mother for me. I am so glad that she called and let me know about your wonderful web page. If there is anything that I can do, please let me know!!! I was wonderful seeing the pictures of him! It means a lot to me as well as other he
e at Countrywide. Please give Steven a big hug from us and tell him, he is still in our prayers!!!
I thank the Lord for Steven!
Keep in touch, would love to hear from you!!
Take care little man!!!! :-)
Robin - 10/01/98 14:14:55
My Email:rebr2@aol.com
Comments:
Here's a loving intention that healing magic be sent your way, Steven. I envision you healthy, happy, and fulfilled.
Blessed be.
Steven Saito - 09/22/98 18:18:46
My Email:ssaito@teleglobe.com
Comments:
Thank you for sharing Steven's travails. It can imagine the pain that you must have felt, but sometimes it's the patient himself that has to be the bravest.
I am 100 days out of cytoxan therapy for super severe aplastic anemia, and it is nice to know there are others who understand this experience.
Donna L. - 09/19/98 00:45:21
My Email:d_leung1@yahoo.com
Comments:
Good luck! I know everything will be all right! You are a brave and strong boy, with a great future just waiting for you!
Katy Hubbell & Mom Mary - 09/16/98 01:58:15
My URL:http://www.geocities.com/hotsprings/spa/6685
My Email:Mshubb2@aol.com
Comments:
Steven....YOU ROCK little buddy! Keep on gettin' better & better each day. You have alot of people pullin' & praying for you.
Love, Mary & Katy Hubbell
Midge O'Neil - 08/31/98 15:25:16
My URL:http://www.jewelsofhealing.com
My Email:info@jewelsofhealing.com
Comments:
Steven, you are the most beautiful guy!!!!!!!
You are truly amazing to have experienced all that
you have at such a little age. . .but of course,
you have such a tremendous mommy; not to mention your great daddy and little sister. . .you are always in my prayers along with the rest of your family. I send you much love, Midge